Another PGD story: Hunter syndrome
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Another PGD story: Hunter syndrome
Oct 26, 2014
CBS News
The only way for us to put an end to this epidemic is to help those that are suffering. LET'S START WITH YOU! | Hunter.Vs.Addiction
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The only way for us to put an end to this epidemic is to help those that …
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For people living with Hunter syndrome, glycosaminoglycan (GAG) buildup contributes to many issues in the brain and body. See why reducing GAGs to normal levels is an unmet need for the community. | Hunter Syndrome: Brain & Body
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This mother describes how she learned that her son has #HunterSyndrome—a serious genetic disorder that primarily affects males. http://bit.ly/HunterSyndrome Learn more at www.hunterpatients.com. | The Balancing Act
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This mother describes how she learned that her son has #HunterS…
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FacebookThe Balancing Act
Living in the moment: A family’s story of living with the devastating rare disease Hunter syndrome. February marks Rare Disease Month. In the UK, there are thousands of children like Danny, living with a rare and often incurable disease. At Action Medical Research we fight for answers for some of the toughest fights our children face. Watch our film and find out more about Danny's story and crucial research co-funded by Action Medical Research and LifeArc – action.org.uk/rare. #HunterSyndrome #m
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Living in the moment: A family’s story of living with the devastatin…
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UNC Research is hope. 20-month-old Ben Sesler has Hunter Syndrome, a rare and progressive genetic disorder that primarily affects boys and can lead to organ damage, skeletal abnormalities, hearing loss, and cognitive decline. Hunter Syndrome affects about 500 boys in the U.S. and about 2,000 worldwide. There currently is no cure. The Muenzer MPS Center in the UNC School of Medicine (@unc.som) is conducting a clinical trial for children with the disorder to evaluate a treatment that could help mi
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